DebRA of America invites you to a private shopping party on Thursday, May 10 from 6:00 p.m. - 8:00 p.m. at Lilly Pulitzer in New York City. Cocktails and light bites will be served. Enjoy an informal fashion show featuring the new summer 2012 collection!
10% of event sales will be donated to DebRA,
the only national not for profit that supports the research for a cure and treatments for, while providing services and programs to those who suffer from the rare and painful genetic disorder, Epidermolysis Bullosa (EB).
DebRA's mission is to alleviate the inherent daily stress of living with "the worst disease you've never heard of."
RSVP not required. For more information: (212) 868-1573 x105 or email@example.com
Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB). EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births. Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores- inside and outside their bodies. There is NO cure and the only treatment is wound care, bandaging and pain management.
Please visit www.debra.org or Like us on Facebook: www.facebook.com/debraofamerica.