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Dancers from the National Dance Institute at Jeffrey Modell Foundation Spring Ahead Gala 2009. |
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| The Jeffrey Modell Foundation (JMF) honored 10-month-old Dawson Bornheimer, the first baby in the world to be diagnosed, transplanted and cured of Severe Combined Immunodeficiency (SCID) as a result of mandatory newborn screening. SCID, which is commonly known as “Bubble Boy” disease, is fatal if not treated in the early months of life. Expert physicians from all over the world joined JMF supporters to celebrate Dawson as he received the “Ultimate Dream” award. SCID is one of the 160 Primary Immunodeficiency Diseases that affect an estimated 3-6 million Americans. A newborn baby with SCID will not survive to his or her first birthday; however, a bone marrow transplant can cure the disease. |
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Expert Physicians from 6 continents |
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| Bone Marrow Transplants now have 95% success rate if screened early. If the condition is discovered 6-8 months into life, the success rate drops dramatically, the costs are prohibitive and the baby may not survive, which is why newborn screening is so vital. You have to know if your baby has SCID, and the only way to know is to screen! The Jeffrey Modell Foundation funded the first population screening for newborns in the state of Wisconsin, where all newborns are being screened currently. Founders Vicki and Fred Modell established the JMF in 1987 in memory of their son, Jeffrey, who died at the age of 15 from complications of Primary Immunodeficiency, a genetic defect that can be fatal and that affects an estimated 3-6 million Americans. Today, the JMF is a multifaceted global nonprofit organization devoted to the early and precise diagnosis, meaningful treatments, and ultimately cures of PI, and is focused on physician education, public awareness, and clinical and basic research to better understand and treat PI. There are 52 Jeffrey Modell Research and Diagnostic Centers worldwide. |
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| Last Thursday Blair Husain and American Ballet Theatre's Junior Council celebrated an Evening at the Ballet Center Cut at the Empire Hotel right across from Lincoln Center. |
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| Ira and Ingeborg Rennert hosted a benefit for Southampton Hospital at their Bridgehampton estate. |
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| The 2009 Alpha Awards took place at the Ballroom in the Prince George Hotel. All proceeds raised at the event went to The Alpha Workshops. This year, they honored Cindy Allen, Editor in Chief of Interior Design magazine, Celerie Kemble of Kemble Interiors and Allen Nissim of Tiffany & Co. The awards were created to recognize the generous supporters of The Alpha Workshops. The Alpha Workshops is the only non-profit organization in the country providing job training and supported employment to low-income HIV-positive decorative artists. For more information on The Alpha Workshops, please visit www.alphaworkshops.com [1]. |
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| 400 New Yorkers came out to celebrate Solar 1’s annual “Revelry By The River.” The evening was to benefit and build enthusiasm, awareness and help raise funds needed to break ground in 2009 for Solar 2, a replacement for Solar 1 Green Energy, Arts and Education Center in New York City. Solar 2 [2], will be the first Platinum LEED certified public building in the city to leave a “zero carbon footprint.” It will generate more energy than it consumes, becoming a prototype for many major cities in this country. The Solar One’s Honorees were HSBC, for their leadership role in addressing climate change, Matthew Modine, for his environmental activism and “Bicycle for a Day” program. Kathleen “Kick” Kennedy received the Young Environmentalist Award for her work on behalf of Waterkeeper. CO-CHAIRS H. Hartley du Pont and Jane Steiner Hoffman and Executive Director, Chris Collins celebrated with Governor Pataki, Brooke Shields, Lake Bell, Blaine Trump, Tracy and Jane Snyder, Cynthia Lufkin, Chappy and Melissa Morris, John Cahill, Betsy Gotbaum, Carol Higgins Clark, Alex McCord and Simon van Kempen, Cynthia Basinet, Jeff Davis, Judy and Archibald Cox, Alex and Nancy Auersperg, Patricia Burnham, Barbara and Bruce Winston, Stephanie Krieger, Margo M. Langenberg, Gilbert P. Schafer III, E. Paul du Pont III, Melissa and Thor Thors, Tracy and Jay Snyder, George C. Whipple III, Lauren Bush, Lyn Devon, August Irenee du Pont III, E. Paul du Pont IV, Hadley Nagel, Lauren Remington Platt, Ashley Wilcox Platt, Luke Siegel, Sarah Bradford Wetherell, Hilary Cushing Block, Peggy Race, Simone and Chris Mailman, Robin Reardon, Mara and Chris Shore, De and Randy Snook, Olga and Paul D’Alto, Risa Goldstein, Christine Schott, Barbara Tollis, Lisa Nilson Levin, Ramon Martinez III, Francesca Olivieri and Chris White Brooke Douglas Block, Emery Westfall, Carole Bellidora-Westfall, Christine Mortimer Biddle, Robin Bell and Paul Hale. |
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| Photographs by ©PatrickMcMullan.com (ABT and SH Hospital). | Click here [3] for NYSD Contents |